Health

Rare diseases have become an important issue affecting the health of children in China. Data shows that there are about 20 million rare patients in China, with an annual increase of 500000. The vast majority of rare diseases can cause death and disability, leading to a heavy social and economic burden. Led by Professor Zhou Wenhao from the Affiliated Pediatric Hospital of Fudan University, the team has completed the establishment and promotion of precise intervention strategies for rare neonatal diseases, and won the first prize of Shanghai Science and Technology Progress Award in 2022. What is a rare disease? Expert introduction: rare diseases are diseases with an incidence of less than 1/10000. At present, there are more than 7000 rare diseases in the world, 50% of which occur in the newborn period. For a long time, there have been obvious bottlenecks in the treatment of rare diseases. Firstly, diagnosis is difficult. 65.9% of doctors are not familiar with rare diseases, and the average diagnosis time is 4.26 years. The overall misdiagnosis rate is 42%

Recently, Zhu Yongyun, director of the Department of Nail and Breast Surgery of Pudong New Area People's Hospital, and Wang Mei, director of the Department of Gynecology, after full preoperative preparation and with the close cooperation of the Department of Anesthesia, performed a radical operation for breast cancer and pelvic floor reconstruction for an elderly woman at the same time. The surgery was a complete success, and the patient has been discharged smoothly for further rehabilitation treatment. At the age of 75, Grandma Li discovered a nodule in the right breast during a community physical examination. The son was not at ease and took his mother to visit the expert clinic of Zhu Yongyun. After further examination, it was found that there was a nearly 4-centimeter sized hard nodule in Grandma Li's right breast at three o'clock, suggesting a malignant breast tumor. Grandma Li quickly moved into the A breast milk ward of Pudong New Area People's Hospital. Attending physician Zhang Mingxiang discovered during medical history and physical examination that Grandma Li's external genitalia had protruded into an adult

On the noon of September 5th, the Seventh People's Hospital of Shanghai received a call from the East China Sea Rescue Bureau: a fisherman on a fishing boat in the East China Sea had head injuries and continuous blood flow. Please send doctors from the Seventh Hospital to participate in the rescue! The doctors from the Seventh Hospital ran towards the helicopter. Maritime rescue is urgent. Lei Ming, the director of the intensive care department, Zhang Tao, the deputy director of the emergency department, and Wang Qing, the head nurse of the ICU ward, quickly picked up the red first aid kit that had been prepared long ago, took the emergency arranged vehicle from the hospital, and rushed to the headquarters of the East China Sea Rescue Bureau - Shanghai Gaodong Heliport. 20 minutes later, they arrived at the East China Sea Rescue Bureau. Zhang Tao and Wang Qing quickly put on their emergency equipment within 3 minutes and flew to the East China Sea rescue point with the 5 crew members of the East China Sea rescue team. Doctor Zhang Tao and nurse Wang Qing from the Seventh Hospital are on the helicopter. The rescue point is 89 kilometers away from Gaodong Airport, with a helicopter