Caring for the survival status of glioma patients, experiencing the power of life in the dazzling light and shadow, wishing for life | Gliosis | Life
When it comes to glioblastoma, many people's first impression is terrifying and fearful. The continuous impact of diseases is hard to let go of, but in the process of fighting against diseases, patients also have a beautiful side of life that has been overlooked. On July 18th, the China Primary Health Care Foundation, in collaboration with the Shanghai Anti Cancer Association Neurology Professional Committee, jointly hosted the "Aipu New Life - Brain Glioma Care Home 2nd Anniversary Celebration Sharing Event", and released the 2023 version of the "Every Second Worth Guarding" brain glioma patient survival documentary image collection on site.
One of the main characters in the TV series, a patient named Tingting, passionately shared, "This year is my third year of rebirth. With the help of the 'Star Wish Plan', I went to Shanghai Disneyland with my whole family and harvested my happiest moment under the brilliant fireworks. In the past, I was unable to let go of the consecutive blows of ovarian and brain cancer. I am grateful for the help of my family, doctors, and foundations, which gave me the courage to face the disease directly. With the help of 'Shanghai Huibao', my treatment costs have been greatly reduced, and I have now entered the stage of being able to use tumor electric fields for long-term treatment of charity patches. I hope that my experience can inspire more patients to overcome the haze." Welcome a beautiful life. "
Brain glioma, originated from brain glial cells, is the most common primary intracranial tumor, with an annual incidence rate of 5-8/100000. According to WHO, it is classified as grade I - IV according to the degree of malignancy. Glioblastoma is the most malignant grade IV glioma, with a recurrence rate of almost 100% and a 5-year survival rate of only 4.7%. It is considered one of the most challenging and difficult to treat tumors in neurosurgical treatment.
The representative of the organizer, Cao Xirong, Chairman of the China Primary Health Care Foundation, said, "This year is the second year since the establishment of the Care Home for glioma patients. We are very pleased to work together with the Neurology Professional Committee of the Shanghai Anti Cancer Association to jointly host this event and further strengthen the power of the Care Home. We have also launched the 'Star Wish Plan' to encourage glioma patients to share their wishes and record the process of realizing their wishes, feel the care and companionship from all sectors of society, enhance treatment confidence, and enjoy every bit of beauty in life."
Professor Wu Jinsong, Chairman of the Neurotumor Professional Committee of the Shanghai Anti Cancer Association and Neurosurgery Department of Huashan Hospital affiliated with Fudan University, as a representative of the co organizers, pointed out that "Brain cancer patients, especially those with gliomas, often face a heavy disease burden and enormous mental pressure. Doctors not only need to alleviate patients' pain through treatment methods, but also need to empathize with them and inspire their confidence in treatment."
Experts attending the meeting pointed out that glioblastoma is a highly malignant tumor, and scientists around the world are working hard to overcome this disease. The effect of single therapy is not ideal, but combination therapy can significantly improve the treatment prognosis of patients, which is currently the mainstream treatment approach. In recent years, the breakthrough innovative treatment of electric field therapy, combined with surgery, radiotherapy and chemotherapy, has attracted much attention. The median overall survival period can exceed 20 months. In addition, both targeted therapy and immunotherapy are currently research directions.
In order to encourage more patients to regain their confidence in treatment, with the support of Zaiding Pharmaceutical, "Care Home" has gone to 7 cities across the country to hold 10 offline exchange meetings, and launched the first domestic documentary on the survival of glioma patients in 2022. At this year's 2nd anniversary celebration at the Care Home, the second national documentary survival photo album of glioma patients was released as scheduled. More than 150 photos realistically presented the positive living conditions and happy moments of glioma patients, allowing every guest present to feel the power of life in the dazzling light and shadow.